Patient Support Groups

Albinism

• National Organization for Albinism and Hypopigmentation

Aniridia Syndrome

• Aniridia Foundation International
  
• Vision For Tomorrow 
• Aniridia Europe

Anophthalmia

• ican – the International Children’s Anophthalmia Network
• MAPS (Microphthalmia/Anophthalmia Parent Support)

Axenfeld-Rieger Syndrome

• Axenfeld Rieger

Bardet-Biedl Syndrome

• Bardet Biedl Syndrome Family Association

Best Disease (vitelliform macular degeneration)

• Best Disease Support and Awareness

CHARGE Syndrome

• The Charge Syndrome Foundation

Choroideremia

• Choroideremia Research Foundation

Coloboma

• Coloboma Support Group

Cri du chat Syndrome

• International Cri du chat

Leber’s Congenital Amaurosis

• Lebers Congenital Amaurosis Support Group

Marfan Syndrome

• The Marfan Foundation