ImproveCareNow

ImproveCareNow is a collaborative chronic care network of 90 care centers in 36 states, the District of Columbia, two in England and one in Qatar, where clinicians, researchers, patients and families are working together to transform the health, care and cost for 25,400 children and youth with Crohn’s disease and ulcerative colitis. Since early 2008 the proportion of our patients who are in remission has progressively increased from 55% to over 80%. If all children and youth in the US with inflammatory bowel disease were participating in ImproveCareNow, over 10,000 more would be in remission now. ImproveCareNow is a learning health network for the acceleration of innovation, discovery and the application of new knowledge. ImproveCareNow is supported by the American Board of Pediatrics, the Alliance for Pediatric Quality, the Centers for Education and Research in Therapeutics, the US Agency for Healthcare Research and Quality, the National Institutes of Health, the Patient Centered Outcomes Research Institute, Crohn’s & Colitis Foundation, pharmaceutical companies and participating care centers, and collaborates with the North American Society for Pediatric Gastroenterology, Hepatology and Nutrition and the FDA. Health care organizations, physicians, patients and families can play a vital role in expanding ImproveCareNow so all children and youth with IBD can participate in the ImproveCareNow Network.