Resources List - Department of Neurology

My ALS Journey – About This ALS Association tool is a web-based platform delivering guidance and support to people living with ALS, with many actionable checklists.
Your ALS guide is an excellent website to get you started. Has audio/video as well as written material. https://www.youralsguide.com/
ALSA resource guides are helpful – very detailed – https://www.als.org/navigating-als/resources/living-als-resource-guides
IamALS: Patient-led national organization with lots of resources and opportunities to get involved. This link will get you started: https://iamals.org/get-help/
Synapticure is another layer of assistance, with care coordination and resources for people living with ALS and their caregivers. https://www.synapticure.com/

ALS Association local chapter has support groups for people living with ALS, their caregivers and their family members. https://www.als.org/local-support/support-groups?f%5B0%5D=support_group_chapter%3A7
IamALS is a patient-led organization that offers support groups and peer mentors. https://iamals.org/get-help/

IamALS is a patient-led advocacy organization that has endless ways to get involved and make a difference. This is an inspiring, activated, hopeful group of advocates that are committed to making things better and supporting each other in the process. https://iamals.org/action/
Hummingbird fund: a Charlottesville-based advocacy organization started by Jim and Peggy Plews-Ogan, (both physicians at UVA), their family, patients and friends. Jim developed ALS in 2021. https://hummingbirdfundva.com/

Duke ALS Untangled site: comprehensive evidence based reviews of a variety of alternative therapies – Completed Reviews – ALS Untangled
Good article on CBD and THC https://dailycbd.com/en/best-cbd/als/